• Change in walking speed

    • Walking on a treadmill,

    • Walking back,

    • Walking up the stairs,

    • Walking on a reduced support surface,

    • Walking to the beat (according to music, counting)

    • Sitting on an unstable surface - a therapy ball,

    • Crossing the barrier,

    • Reaching for/touching,

    • Clapping,

    • Moving objects

    • Weight transfers

    • Mirror therapy,

    • Camera recording (as feedback on correct posture and walking pattern),

    • Keeping a rehabilitation diary,

    • Sensory stimulation,

    • Visualisation,

    • Progressive muscle relaxation,

    • Supportive pain-relieving electrotherapy (TENS).

  • Show patients positive signs that indicate the possibility of normal movement

    Evidence of normal movement can help patients and their families accept the diagnosis. Positive signs and their descriptions can be found under the tab "Diagnosis".

  • Use distraction techniques

    One of the biggest challenges for physiotherapists will be to distract the patient's attention away from the symptoms, preventing cognitive control of movement, while allowing automatically generated movement. This can be achieved by instructing the patient to be cognitively active during movement (e.g. counting backwards from 100; solving a mathematical puzzle, listening to music, talking, etc.) or by using rapid, rhythmic or even unpredictable movements. Tasks that target a variety of movements are more effective, according to studies, because they directly improve performance and stimulate implicit motor control.

  • Use appropriate language

    Language is an important strategy in physiotherapy work with patients who have FND. It is crucial to use language that does not imply stigmatisation or blame of the patient, assuming that they are consciously causing their symptoms.

  • Use a gradual or stepped approach

    Given the frequency of chronic fatigue and/or pain in FND patients, it is useful to consider, in the context of an overall rehabilitation programme, the level of tolerance and the appropriate level of intensity that will lead to progress but not lead to worsening of symptoms. This is why a gradual or stepwise approach is recommended, tailored to each individual patient and their specific combination of symptoms.

  • Physiotherapy rehabilitation diary

    Keeping a diary, with the support of a physiotherapist, can help patients consolidate the information they have learned during physiotherapy and help them understand their motor symptoms. The diary can be used to monitor goals, to measure results, to monitor the effects of different techniques and/or strategies, to plan activities. The diary can be very empowering for the patient and is also part of the intervention itself.

    The diary should include the following points (Nielsen, 2016) :

    • understanding the diagnosis based on the patient's personal experience

    • relevant symptoms, their triggers and maintaining factors, self-management strategies

    • reflections and notes from physiotherapy sessions

    • the strategies they have learnt during treatment that normalise their movement

    • targets achieved or markers of progress

    • future objectives and plans to achieve them

    • plans for what strategies they will use on difficult days and setbacks

  • Use mirrors and videos

    Visual feedback (e.g. using a mirror while doing an exercise) can reduce excessive attention focused on symptoms and make it easier to re-train movement. The use of videos is useful to monitor progress, demonstrating to patients how movements normalise using different strategies and distractions, as well as how they deteriorate when attention to symptoms increases.

Examples of different techniques and strategies, depending on the symptom expressed (adapted from Nielson et al., 2014)

    • Make the movement "voluntary", so that the patient is actively shaking - change the amplitude and frequency of the movement.

    • Teach the patient how to relax their muscles by actively contracting them for a few seconds and then relaxing them.

    • Changing normal postures and movements that are important for symptoms.

    • Have the patient perform a 'competitive' movement, such as clapping to a rhythm, or a flowing movement such as conducting.

    • Focus on another part of the body, for example have the patient tap with the other arm or leg.

    • Muscle relaxation exercises. For example, progressive muscle relaxation techniques, biofeedback EMG for the upper trapezius muscles, or using mirror therapy.

    • Side-to-side or anterior-posterior weight shift. When the tremor decreases, slow weight shift to reach rest.

    • Competitive movements such as tapping your toes.

    • Make sure the patient distributes weight evenly when standing. This can be helped by using scales and/or a feedback mirror.

    • Changing the habitual postures that are important for the symptoms. For example, reduce the load on the front of the foot.

    • Change your usual sitting and standing posture to avoid long periods in fixed joint positions and promote good posture.

    • Normalise movement patterns (e.g. sitting and standing, moving, walking) with an external or altered focus of attention (i.e. not the dystonic limb).

    • Discourage unhelpful protective avoidance and encourage normal sensory experiences (e.g. wearing shoes and socks, weight bearing).

    • Prevent or eliminate hypersensitivity and hypervigilance.

    • Teach the patient strategies to 'switch off' overactive muscles when sitting and lying down (e.g. by allowing the supporting surface to take the weight of the limb. Folded towels may be needed to allow the support surface to rise up to the limb where contractures are present).

    • The patient may need to be taught to be aware of maladaptive postures and overactive muscles so that strategies can be applied.

    • Consider trying electrical muscle stimulation or functional electrical stimulation to normalise posture and limb movement.

    • For occasional sudden jerky movements, focus on the pre-shock predictor symptoms, which can be addressed by distraction or diversion.

    • If present, address pain, excessive muscle activity or altered movement patterns that may be present before the jolt.

    • Early weight bearing with progressively less upper limb support + weight bearing in a safe environment

    • Walking on a treadmill (with or without a weight support belt and with mirror feedback)

    • Walking faster

    • Induce ankle dorsiflexion activity by asking the patient to walk backwards, by shifting weight to the anterior/posterior side while standing, or by using a gliding gait.

    • Using electrical muscle stimulation

    • Stimulate an automatic postural response of the upper limbs by having the patient sit on an unstable surface such as a therapy ball, with the upper limbs resting on a support surface.

    • Practise tasks not directly related to symptoms, e.g. making phone calls

    • Walking faster (with caution, it can sometimes worsen symptoms)

    • Slower walking

    • Patients should walk with their feet sliding forward (plantar surface of the foot in contact with the ground; as if wearing skis). Progress gradually towards a normal gait.

    • Build a pattern of normal walking from simple achievable components that gradually converge to normal walking. For example - weight shift, continue with a weight shift that allows the feet to "automatically" advance in small amounts, gradually increasing the length of this stride by focusing on maintaining a rhythmic weight shift rather than the act of stepping.

    • Walk with lighter weights in each hand.

    • Walking backwards or sideways.

    • Walk in a certain rhythm (e.g. to music, counting: 1,2,1,2...).

    • Excessive exercise (e.g. walking with high steps).

    • Walking up or down stairs (this is often easier than walking on the flat).

  • Explain the diagnosis to the patient

    You have functional weakness/temporal/dystonia/walking difficulties.

  • Check that the patient understands the diagnosis

    What has your doctor told you about this disorder?

    How do you understand it?

  • Explain to the patient what FND is and confirm that it is a real disorder

    In a functional neurological disorder, there is a problem with access to normal movement.

    It is a fairly common neurological disorder.

    I know that you are not making up symptoms and that "it's not all in your head".

  • Explain what the FND is not

    The symptoms you are experiencing are not caused by structural damage to your brain, spinal cord, nerves or muscles. However, many patients have associated neurological or other problems that worsen FND symptoms; e.g. arthritis or migraine.

  • Explain how the diagnosis is made and how the symptoms differ from other neurological symptoms

    FND symptoms differ from other neurological symptoms in that they change depending on how much attention you give or take away from them.

    Hoover's sign - did you see that when you tried to push your leg down, you didn't have to do that, but when you pushed your other leg towards my arm, the muscle 'switched on' via a reflex? This means that the problem is not structural damage to the muscle or nerve, but your ability to access the movement.

    The severity of your symptoms varies; sometimes they are much worse than others. This variability in the severity of symptoms is a characteristic of FND and is used in making the diagnosis. This variability is not possible with symptoms that are caused by a structural neurological disease.

  • Explain what is meant by variability and distractibility

    Variability/distractibility is related to where the brain directs attention. When attention is focused on a body area or symptom, the symptom usually gets worse. Some patients notice that the more they try to move normally or suppress the symptom, the worse it gets. Usually automatic movements are performed better, but the more one tries, the more difficult the movement becomes. A similar thing can happen to a professional athlete who, under pressure, starts to 'overthink' instead of relying on 'muscle memory'.

  • Discuss amplification of problematic movement

    Repetition of a particular movement or symptom reinforces the motor programme, which becomes a 'subconsciously learned' movement pattern. This means that the brain starts to expect the movement to be performed in the wrong way.

  • Discuss secondary symptoms

    Problems with movement often lead to secondary problems such as muscle pain, hyper-sensitivity, fatigue and pain, sleep problems, concentration problems. These associated symptoms often worsen and/or perpetuate the original symptoms.

  • Explain the reasons for the development of the FND

    We still do not know for sure why someone develops FND, just as we do not know why some individuals develop multiple sclerosis and Parkinson's disease.

    FND is a complex disorder triggered and maintained by several factors.

  • If relevant, discuss triggers

    It is good if patients identify the events that triggered their symptoms; the most common are illness, injury, surgery, shock... For some individuals, the triggers are psychogenic. If so, refer the patient for appropriate psychological treatment.

  • Explain the role of physiotherapy

    Physiotherapy can help you relearn, access and control movement. The path will not be easy and will require a lot of effort. Awareness will be very important; awareness of what you can do, what slows your progress, what improves it.

  • Express optimism for progress, while warning that a lot of work will be needed

    Physiotherapy has been shown to be effective for many patients, but you will need to put in some effort.

    • Nielsen, G. (2016). Physical treatment of functional neurologic disorders. Handbook of clinical neurology, 139, 555-569.

    • Nielsen, G., Buszewicz, M., Stevenson, F., Hunter, R., Holt, K., Dudziec, M., ... in Edwards, M. J. (2017). Randomised feasibility study of physiotherapy for patients with functional motor symptoms. Journal of Neurology, Neurosurgery & Psychiatry, 88(6), 484-490.

    • Perez, D. L., Edwards, M. J., Nielsen, G., Kozlowska, K., Hallett, M., in LaFrance Jr, W. C. (2021). Decade of progress in motor functional neurological disorder: continuing the momentum. Journal of Neurology, Neurosurgery & Psychiatry, 92(6), 668-677.